Taylee Gulas, now 7, was born without an esophagus and part of her airway. She has a rare condition called VATER syndrome, which causes a series of related birth defects in infants. For Taylee, that means she can\?t talk, eat, or swallow normally and needs a trach tube. It also means that she requires constant medical care, so the family has a home health care nurse 120 hours a week.
Source: http://www.ncbea.net/health-and-fitness/home-health-care/
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